top of page

Withdraw

the FII Label

We are a campaign led by survivors, clinicians, social workers and academics

An Open Letter...

We call for:
  • Immediate withdrawal of the FII label and associated guidance
     
  • Creation of new, evidence-based frameworks co-produced with disabled people and parent carers
     
  • Professional training that promotes collaborative, family-centred practice, and understanding of disability and distress
     
  • A review by regulatory bodies—including the GMC, Royal Colleges, and NICE—of any guidance legitimising the use of FII
     
  • Judicial caution in accepting FII allegations without rigorous factual analysis and greater scrutiny of expert witness testimony

​

 

Recent coverage in The Sunday Times has exposed the devastating consequences of misidentifying parents - mostly mothers - as fabricating or inducing illness in their children.

 

It told the stories of Ella, who was separated from her mother for eight months and placed with untrained carers who failed to meet her complex needs, and Melody, whose mother watched her die in pain after medication was withdrawn during an FII investigation. We know of many more such cases. These are not abstract tragedies—they are direct, preventable outcomes of acting on flawed guidance.

​

FII is not a medical diagnosis.

 

It has no agreed criteria, no reliable method of identification, and no robust evidence base. Yet guidance intended to protect is instead causing harm— particularly to disabled and neurodivergent children with complex needs. Parents are increasingly suspected of fabrication not because of evidence, but because they persist in seeking answers, disagree with professionals, or challenge misdiagnoses. Advocacy is being pathologised.

​

We acknowledge that in a very small number of cases, illness may be fabricated or induced by a parent or carer. These are extremely rare and should be treated as either criminal matters or mental health concerns, using established safeguarding, forensic, or psychiatric pathways. They do not require a vague and misapplied label like FII.

​

A review of Child Safeguarding Practice Reviews in England (2010–2021) identified only four cases of serious harm due to confirmed fabrication or illness induction—none involving a child’s death. In contrast, hundreds of families report lasting trauma following false FII accusations: delayed treatment, forced separation, exclusion from services, and fear of seeking help again—even in emergencies.

​

This is not safeguarding.

 

It is systemic harm

​​

 

​

The Hard Truth

The facts

Of 1,766 serious review cases, only four included an impact from FII, and in these cases the greater impact was from mis-identification of medical problems.

Read the paper

sign-contact

Who we are...

Giving a voice to organisations and 276 individuals including 135 with lived experience

 

Elizabeth Archer, CEO, PDA Society.
Dr Ana Laura Aiello, Cerebra Postdoctoral Researcher, University of Leeds.
Dr Andy Bilson, Emeritus Professor of Social Work, University of Central Lancashire
Paul Bywaters Emeritus Professor University of Huddersfield.
Jess Camburn-Rahmani, CEO, Cerebra
Elly Chapple, mother, founder of FlipTheNarrative
Sonya Chowdhury, Chief Executive, Action for ME.
Luke Clements, Cerebra Professor of Law & Social Justice, the University of Leeds.
Taliah Drayak, Co-Founder of Society for Family Preservation, Research Fellow, Department of Public Health, University of Cambridge
Sian Erickson, MSC SCPHN, Co Chair PFAN.
Dr Judy Eaton, Consultant Clinical Psychologist, Help for Psychology Services
Laura Ferguson, Independent researcher in autism and parental blame.
Lucy Fullard, CEO Parent and Carer Alliance CIC
Emma Gant, Safety First Wales.
Claire Glasman, WinVisible (women with visible and invisible disabilities).
Amy Griffiths, BA Hons, LLM (Human Rights Law), PhD Research Candidate (Public Health), Swansea University
Dr Fiona Gullon-Scott, Senior Lecturer in Clinical Psychology, Newcastle University.
Beverley Hitchcock, Director of Research & Support Services, Cerebra
Debbie Hollingsworth, Independent researcher in autism and parental blame.
Donna Kelso, Voice for Change Staffordshire
Cathleen Long, independent social worker, lead author BASW guide on FII
Tammy Mayes, Former co-chair of PFAN
Fiona MacLeod, Advisory Project Manager PAN Cymru.
Amanda Maguire Founder of Neurodiverse Adventures
Andy McDonnell CEO Studio3
Emma McGinnis, Lecturer, Ulster University, and co-chair PFAN.
Anne Neale, Support Not Separation
Tracey Norton, Disabled Mothers’ Rights Campaign
Sally Russell OBE, Trustee PDA Society
Jacqui Shurlock, Chief Executive, Challenging Behaviour Foundation
Diana Skelton, Head of Giving Poverty a Voice Programme, ATD Fourth World.
Dr David Thorpe, Emeritus Professor of Applied Social Science, University of Lancaster
Dr Adrian Tookman, Chairman Forgotten Patients Overlooked Diseases and Retired
Palliative Medicine Physician
Chrissa Wadlow Founder & Managing Director, Sunshine Support
Renata Watts, Co-Director, Special Needs Jungle
Dr David Wilkins, Professor of Social Work, Cardiff University
Emma Williams, Independent Child Protection

​

Added via this website:

​​

​

A. Parent

Adam

Aimi Lacanivalu

Alex Andrews

Alex Curtis

Alison Ryan

Alison Harrison

Amy

Amy Kirkham

Andrea Spain

Ange Spencer

Angela (Wood) Favell

Anna F

Anne Ball

Anne Donovan

Arlo

Artis Grace

Ashley challener

Bansi Shah

Becky Harrison

Becky Mulholland

Benjamin Winfield

Beryl Challener

Bethan McDonald

Bonnie Patton

Bryony Carter

C. Mansfield

Carol Binks

Carol Stott PhD

Caroline Bailey

Caroline Fricker

Caroline Li

Cecilia

Cee

Ceri Jones

Charlea Lewis

Charlotte Mayou Lynham

Chloe hughes

Chris Wunderlin

Chrispy freshfern

Claire

Claire Davies

Claire Rutter

Clare Greenaway

Clare Lucignoli

Colby Davis

Craug

Daisy

Daniel Lee Clements

David Griffin

Dawn Salter

Dawn Sharples

Dawn Shimmield

Dean Mason

Deborah Bircham

Deborah Connoley

Debs shine

Demita Laza

Dewi Thomas

Dexter

Dr Arosha fernando

Dr Georgie Siggers, Consultant Paediatrician, FRCPCH

Elaine McMillan

Eleanor Spencer

Ella

Elysia welvaert

Emma Iraci

Emma mannings

FIONA CONNOR

Fiona MacLean

Gemma Long

Gene People

Gillian Crea

Gin Lang

Ginny Peszynska

Grace Porter

Graham hughes

H Curtis

H Hart

Hayleyyy

Helen Coney

Helen Gibson

Helen Luck

Helen McLaren

Henry Anderson

Hippymum1963

Holly

Ianthe Campion

Irene Thorpe

JL

Jade Delta

Jaki

Jana Touati

Jane Bucknall

Jane Harris

Janet Brooksbank

JanetM

Janice Watkins

Jean Perry

Jeanette Harris

Jen Evans

Jennifer Wilson

Jenny Hedges

Jenny L

Jenny mcevoy

Jess Hawkins

Jessie Smith-Tahir

Joan Crawford

Joanne Barnwell

Joanne Luongvan

John Mason

Jordan Andrews

jordan eglintine

julia

Julia Caro

Julie fitch

Julie Haystead

JWPC

K Flanagan

Kae Fairhill

Karen Böhr

Karl Davies

Katherine Burns

Kathryn Curtis

Kathryn Lucas

Kathye King

Katie Gittins

Kayla

Kerri Page

Kirsteen Allan

Krystal Gault

L Ward

L. Brittain

Laura Goodall

Laura Howarth

Laura Thomas

Laura Whittington

Lauren Connolly

Lea Hayes

Leonie Potgieter

LG

Liberty Rebel

Lindsay Williams

Lisa Duncan

Lisa Hannah

Lisa Newman

Liz McPherson

Louise Coles

Louise Drake

Louise Parker Engels

Lucia Ciampa

Lucy Montgomery

Lucy Smith

Luke Mason

Lynne B

Lynne Challener

Lynne hughes

M Evans

M field

Magenta 737

Marc Challener

Margaret Roberts

Maria Sale

Mark Harper, Chair, Cambridgeshire ME and LC Support

Martin Evans

Megan jones

Michelle Bourlet

Michelle Holloway

Michiel van Zanten

Miriam Bayliss

Mitchell Hughes

ML Cosgrove

MLamont

mmt

Mr and Mrs P van Dyck

Mrs Gillian Mead

My’relle Morris

Naomi Atticus

Natasha dance

Nichola McPaul

Nicole Jayne Brennand

NLamont

Nramage

Opium Field

Oscar

Pamela Hatcher

Patricia Calloway

Paula Windsor

Peter Kemp

Peter Wobser

PG

Pippa Michele Leeson

Pixie Tenenbaum

PrincessDisney

Rachael Wallingshaw-McGuinness

Rachel Gavin

Rachel Kirkham

Rachel Lauder

Rebecca Freckleton

Rebecca Louise

Renata Ralph

Robert Barr

S Burchill

Sam Dias

Samantha Claridge

Sandra Thomas

Sarah

Sarah Clark

Sarah miller

Sarah Perring

Sarah Shaw

Sarah-Jane Onken

SEA Robin

SH

Sharon Byrne

Sharon evans

Sophie Pumfrey

Sophie Watkins

Stacey

Steph

Stephanie

Steven

Sue Bergstrom

Susan Madon

Suzanne waller

T dolan

T Pain

Tara Anderson-Myrie

Tee Butler

Tiffany Hughes

Tilly Hodgson

Tuva Maria Martinussen

Victoria Murtagh

Virginia Bell

Wayne Shaw

Wendy Boutilier

WMH

WP Cosgrove

Z falconer

​

​

 Contact us

Your details will be kept secure and if you have a question, we will reply soon.

  • If you confirm you would like to sign the open letter, your name will be added to the public signature list.

  • If you allow us to use your story, we may quote you but will not make any personal details public without asking your permission.

  • Your email will not be shared, and will only be used to reply to your contact, to ask permission, and for updates if you wish.

bottom of page